AZ | CO | MT | NM | NV | TX | UT | WY
 

Home

Our Online Publications
Regional Directory of Genetic Services 
Small Grant Projects
Online Genetic Support Groups Directory
Job Postings
Other Links
Peer Reviewed Site
COMMITTEES:
Clinical Services
Consumer Advocacy
Education
Laboratory Practice
Newborn Screening
Prenatal Diagnosis
Public Health

Directory of Online
Genetic Support Groups

S-T

The inclusion of any resource or link in MSGRCC does not imply endorsement. They are provided for educational purposes only.  Consult with your health care provider regarding how any educational information found on the Internet may apply to your own situation.

= Genetic Alliance Member
= NORD Member
= Medical Advisory

- S -

Sanfilippo syndrome At the CDGS Family Network  
Schizencephaly 'Schiz Kidz Buddies'    
Scleroderma      
  Scleroderma Research Foundation  
  United Scleroderma Foundation
Scleroderma Support Online      
Septo Optic Dysplasia Support Group    
Short Stature: Little People of America
Shwachman Syndrome Support Group      
Shwachman Diamond America      
Sickle Cell Disease      
  Sickle Cell Society    
  About Sickle Cell Disease    
Sjogren's Syndrome Foundation Inc.
Smith-Lemli-Opitz      
Smith-Lemli-Opitz Syndrome Advocacy & Exchange  
  SLO/RSH Website/Chat room      
Smith-Magenis Syndrome      
  PRISMS: USA
Sotos Syndrome      
  Sotos Syndrome Support Association
Families of Spinal Muscular Atrophy Home Page  
Spina Bifida      
  Children with Spina Bifida      
  Spina Bifida & Hydrocephalus Association of Ontario      
  Lipomyelomeingocele Family Support Network (LFSN)      
Spondylitis Association of America  
Stevens Johnson Syndrome Support Group  
Still birth- see Miscarriage      
Sturge-Weber Foundation
Succinate Dehydrogenase Deficiency: at UMDF    

- T -

Tay-Sachs Disease      
  National Tay-Sachs & Allied Diseases Association  
Tethered Cord Syndrome Support      
Thalassemia    
Tourette Syndrome      
National Tourette Syndrome Association, Inc.
National Alliance for Thrombosis and Thrombophilia    
Treacher Collins Syndrome      
  The Treacher Collins Network      
Triple-X Syndrome Support Group  
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)  
The National Tuberous Sclerosis Association
Turner Syndrome      
  Turner's Syndrome Society of the United States  
  Turner's Syndrome Society, Texas    

Advocacy, Education
& Empowerment

Genomics and Population Health 2005
Using Family History to
Promote Health
Tools, links, case studies
and much more.

My Family
Health Portrait
Free program to download to help you collect your family health history