The Mountain States Genetics Regional Collaborative Center Consumer Issues Committee invites you to join in the discussion and to find your seat in the policy arena. "Have We Gotten Too Big for Our Genes?" was written to help you understand how genetic research might affect each of us and how we can make a difference. Whether you are a professional, parent, or a person affected with a genetic condition, you need to be heard! This manual is a primer on how join the discussion.
Newborn Screening Practitioners Manual
The Newborn Screening Practitioner's Manual was developed by members of the Newborn Screening Committee of the MSGRCC. It is the Committee's hope that this manual will assist practitioners in understanding the components of newborn screening and their importance in ensuring that children affected with these conditions are able to achieve their highest potential. Download now.
Directory of Genetic Services
A listing of service providers in the Mountain States Region. It includes; consumer support, clinical genetics, newborn screening, prenatal, laboratory, and specialty clinics.
Learn About Genetic Services
From 'What to Expect from a Genetic Evaluation' to 'Questions You May Have for Your Genetic Specialist', this area will help you understand the process of a medical genetics evaluation.
Pregnancy Information
FOLATE: For a healthy you - For a healthy baby
A consumer pamphlet that discusses how you can reduce the risk for certain birth defects. Spanish version. [download PDF]
Thinking About Pregnancy
A consumer pamphlet that outlines conditions which may increase the risk of birth defects or otherwise influence the outcome of the pregnancy. Spanish version. [download PDF]
Multiple Marker Screening
A consumer pamphlet that answers common questions about the maternal serum multiple marker screening test that is now a routine part of prenatal care in many medical practices. Spanish version. [download PDF]
Teratogen Hot Topics
(Drugs, medications, environmental exposures, or maternal conditions that can cause birth defects)
Anticoagulants: Reviewed Feb, 2003
Angiotensin-converting Enzyme Inhibitors: Reviewed Jan, 2000
Anticonvulsants: Reviewed Jan, 2000
Caffeine During Pregnancy: Reviewed Jan, 2000
Cough & Cold Medications: Summer 1998
Diabetes: Reviewed Jan, 2000
Maternal PKU: Reviewed Jan, 2000
Safety of Vitamin A Intake During Pregnancy: Spring 1996
Serotonin Uptake Inhibitors: Prozac, Luvox, Paxil, Zoloft: Summer 1998
Substances of Abuse: Alcohol, Cocaine, Toluene
.
