About Us

Board of Directors

2010 Annual Education Conference


Regional Directory of Genetic Services

Online Genetic Support Groups Directory

Job Postings

Other Links

Peer Reviewed Site



Consumer Support Services

Advocacy, Inc.
7800 Shoal Creek Blvd. 171-E
Austin, TX 78757
Phone: 1-800-252-9108; 1-800-223-4206
Webpage: www.advocacyinc.org
Summary: This is a nonprofit organization dedicated to protect and advocate for the legal rights of people with disabilities in Texas.

Comprehensive Care Program (CCP)
Texas Health Steps

1100 West 49th Street, Mail Code 1938
Austin, TX 78756
Phone: 512-458-7745
Fax: 512-458-7256
Webpage: http://www.dshs.state.tx.us/thsteps/services_ccp.shtm
Summary: This program provides children with special needs services that are typically not covered by the Texas Medicaid plan. Some examples of such services might include private duty nursing; durable medical equipment and supplies; physical, occupational, and speech therapy; and nutritional formulas.

Program for Amplification for Children of Texas (PACT)
Texas Department of State Health Services

Health Screening Branch
1100 West 49th Street
MC 1918
Austin, TX 78756-3199
Phone: 1-800-252-8023
Webpage: http://www.dshs.state.tx.us/audio/program.shtm
Summary: This program provides diagnostic and therapeutic services for children with permanent hearing loss. Individuals must be eligible for Medicaid to qualify for this program.

The Arc of Texas
8001 Centre Park Drive
Austin, Texas 78754
Phone: 1-800-252-9729; (512) 454-6694
Fax: (512) 454-4956
E-mail: secretary@thearcoftexas.org
Webpage: http://www.thearcoftexas.org/index.htm
Summary: The Arc of Texas is private, non-profit agency. Its mission is to enhance the quality of life for people with mental retardation or other developmental disabilities. They provide a wide array of social services, information, referral, and client and family support.

Center for Children with Special Health Care Needs
Department of State Health Services

Moreton Building, Room 442
1100 West 49th Street
Austin, TX 78756
Phone: 512-458-7111, x3110; 800-252-8023
Fax: 512-458-7417
Webpage: http://www.dshs.state.tx.us/cshcn/default.shtm
Summary: This organization provides services to children with extraordinary medical needs, disabilities, and chronic health conditions. These include payments for medical care, family support services, and related services.

Texas Medicaid
Client hotline: (800) 252-8263
To apply for CHIP/Children's Medicaid: (800) 647-6558
Summary: This is a joint state and federal program. It aims to improve the health of people who might otherwise go without medical care for themselves and their children.

Community Based Alternatives Program (CBA) (A Medicaid waiver program)
Phone: 512-438-4882
Summary: The Community Based Alternatives program provides home and community-based services to adults with disabilities as cost-effective alternatives to institutional care in nursing facilities. Staff also provides case management. There is currently a waitlist for this program.

Community Living Assistance (CLASS) (A Medicaid waiver program)
Phone: 877-438-5658
Summary: This program provides home and community-based services to people with physical disabilities that were present before 22 years of age. Some examples of services provided by CLASS include physical therapy, respite care, nursing services, psychological services, and job training. There is currently a waitlist for this program.

The Medically Dependent Children Program (MDCP) (A Medicaid waiver program)
Phone: 877-438-5658
Summary: This program provides respite care for families with medically complicated children and young adults. There is currently a waitlist for this program.

Home and Community-Based Services (HSC) (A Medicaid waiver)
Phone: 512-438-3693
Summary: The goal of this program is to help individuals with disabilities remain in the home by providing individualized services. These services might include case management, personal care aides, and homemaking services. There is currently a waitlist for this program.

Deaf Blind/Multiple Disability Program (DB/MD) (A Medicaid waiver program)
Phone: 877-438-5658
Summary: This program is aimed at helping individuals that are deaf, blind, and have an additional disability (such as autism). Services provided include, but are not limited to, assisted living, residential habilitation, mobility training, and therapy. There is currently a waitlist for this program.

EveryChild, Inc.
9430 Research Blvd.
Echelon IV, Ste. 300
Austin, Texas 78759
Phone: 512-342-8847
Webpage: www.everychildtexas.org
Summary: The main goal of this organization is to provide families with alternatives to institutionalization for a family member with a disability. Their Family-Based Initiative assists institutionalized individuals to return home to their birth families with support. If returning to the birth family is not possible, alternate “Support Families” are recruited to help care for the individual long-term.

United Cerebral Palsy of Texas
5555 N. Lamar, #L-139
Austin, TX 78751
e-mail: ucptx@onr.com

Texas Center for Disabilities Studies
University of Texas
Austin, TX 78712
Phone: 1-800-828-7839
Webpage: http://uap.edb.utexas.edu/
Summary: The Texas Center for Disabilities Studies is located at the University of Texas, Austin. Its mission is to ensure that individuals with disabilities are fully included in all levels of the community. This mission is accomplished through a coordinated program of courses, service delivery, technical assistance, applied research and information dissemination.

Other websites of interest:

Texas Department of State Health Services

American Association on Mental Retardation

Deaf-Blind Multihandicapped Association of Texas

Texas Education Agency

Texas Information and Referral Network


Bob McCurdy